I want to Talk about the Emmys, which were gala. And I must talk about my friend Ali, who is gallant … and with whom I am walking to help stop ALS on Sunday, Oct. 21st.
ALI’S QUEST: Ali Olmo and Kathryn Skatula were the most heartening partners, loving, laughing, singing. Beautiful, bountiful, and blessed. And when Kathryn had ALS, this merciless disease slowly took away her gifted and giving life. While she lived with ALS, she and Ali, the supreme caretaker, inspired us, and no negative thoughts were allowed in their magical home. So, it’s time to bring some magic to others.
I recently heard from Ali and I want to share this with you: “Won’t you join me once again in remembering Kathryn and helping in the fight against ALS. I will be walking on Sunday, Oct. 21, with thousands of others who have lost loved ones. A few days ago, I received an email from my friend, Dr. Michael Isaacson. It was an article about a Rabbi Refoel Shmulevitz, who is possibly the first ALS patient to be cured by a drug that was developed inIsrael. He had been diagnosed in 2010 and was now in an advanced stage of the disease, confined to a wheelchair and having great difficulty with his speech and breathing. He was given a “compassionate treatment” intended for patients with no hope for survival. Miraculously, injections of NurOwn, a new trial drug which utilizes stemcell technology, began to dramatically improve the Rabbi’s condition, to the point where he has regained his ability to walk, talk, and even climb stairs.
As I read this, tears came to my eyes, remembering all the losses and pain that my beloved Kathryn had to bear, the cruelty of this disease, and that for her, this came too late. But I realized that for thousands of people who are diagnosed and are battling this horrific disease, this is a sign of hope … the possibility that there is a cure on the way.
And so, I am walking for them and to once again honor the memory of my life partner, my best friend, and my inspiration, Kathryn Skatula. It’s been four years since her passing to ALS on Aug. 21, 2008 and I still miss her everyday. She was my “angel in disguise” here on earth and is now an angel watching over me from heaven. The thirteen-and-a-half years we got to share was the greatest gift of my life. I want to take this opportunity to again thank all the friends and family, as well as strangers, who came to our side and gave us love and support through this very difficult journey. We couldn’t have made it without you. If you can, please make a donation, however big or small to remember Kathryn and to help others dealing with this deadly disease. Forever grateful, Ali.
I too am walking in Kathryn’s memory, and also to honor one of the best human beings that I know who is now living with ALS. If indeed a cure could be found, this would be more than magical. If you would like to know more, or to donate contact: ?The ALS Association Golden West Chapter?Attn:
Walk to Defeat ALS®
P.O. Box 565
Phone: (818) 865-8067
EMMY TIME: The Television Academy is only getting better and better. The shows were overly abundant with talent and the parties were spectacular. The Actors were presented with their Nomination Awards at a cheery and glitzy do at the Pacific Design Center. Food by Wolfgang Puck. The party was loaded with — very accessible and friendly — television greats. It was a time they could enjoy each other and we could enjoy just being in the stardust. Highlights for me: a reunion, for David, with Mare Winningham. This brilliant actress starred as Helen Keller in David’s television movie Helen and Teacher. (Try and catch a rerun.)
Also Bryan Cranston introduced me to Eric Stonestreet, who loves animals. Love them both! And what would the night have been without Beth and David Bloom?
We’ll Talk (and I hope we’ll walk)…..