Local Youth Battles Rare Disorder


Family and Community Come Together to Fund Research for Treatments

Little Blake Robinson.

The 5th annual Los Angeles NF Walk will be held on Saturday, May 1, 2010, at Westchester Park (near LAX) in honor of nine-year-old Blake Robinson.

Blake was diagnosed with Neurofibromatosis (NF) at the age of 18 months when doctors found a tumor on the optic nerve in his brain. He remained stable for almost six years, but over the past two and a half years he has undergone four brain surgeries and over a year of chemotherapy. The Robinsons, not content to let Blake suffer from NF, have joined with the Children’s Tumor Foundation to raise funds and awareness for NF research.

The Robinsons are helping to organize, and are participating in, the L.A. NF Walk to raise funds to battle the disorder. Last year, over 250 people participated in the walk, which raised more than $60,000. The walk committee is currently looking for corporate sponsors for the event to help raise even more money this year.

NF is a progressive disorder that causes tumors to grow on nerves throughout the body. NF affects more than one in every 3,000 children born, more than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntington’s disease combined.

Children’s Tumor Foundation California office is located at 8939 S. Sepulveda Blvd. #516, Los Angeles, CA 90045. Make checks or money orders payable to Children’s Tumor Foundation. For more information, contact Kelly McGowan at (310) 216-9570 or kmcgowen@ctf.org.

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